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We need to talk about mental health and trying to conceive #takeoffthetape

Posted on March 17, 2016November 6, 2016 by Clare Foster
A quick summary:
  • Coming off medication
  • The inevitable uncertainty and lack of control
  • And then my periods stopped.
  • A truly difficult balance
Find out more about Mind's campaign here: http://www.mind.org.uk/get-involved/take-off-the-tape/
Find out more about Mind’s campaign here: http://www.mind.org.uk/get-involved/take-off-the-tape/

Mind has been asking people to #TakeOffTheTape and share something that makes them anxious. Something they haven’t spoken about before.

I thought I would use the opportunity to write about something that’s hardly spoken about at all.

I’m finding it incredibly hard to balance trying to conceive with managing my mental health.

We don’t talk about this. We don’t even talk about the first twelve weeks of pregnancy much (as I’m well aware from my work with the Miscarriage Association). Trying to conceive often happens in almost complete secrecy. I didn’t realise how it would interact with my fluctuating mental health and I wasn’t prepared.

It’s taken a while to get to this stage. The doctor who removed my coil last year strongly implied that it would be best to continue with my efforts to come off my Citalopram. She moved me to Sertraline (it’s considered safer in pregnancy) and told me to try and reduce my dose completely over the next month.

Coming off medication

In fact it took me three more months. I’ve been trying to come off anti depressants for a while anyway (after a muddled fifteen year relationship with them) and trying to conceive gave me the strength to make it through a hideous withdrawal period. It was probably the hardest thing I have ever done. Alex didn’t have much fun either. I’ve written about it here.

I’m more vulnerable to hormonal changes now. I still have very dark times when everything seems hopeless and I can’t see a way through the next ten minutes let alone the rest of my life. Difficult images and ideas jostle with an endless repetition of fears and doubts. Sometimes the same phrase over and over again. They whisper just below the surface of my consciousness. They’re loud enough to wear me down and shrink my focus to a single point of constant worry – but not quite conscious enough for me to recognise what’s happening in a way that helps me stop.

One these days I’m separated from the world by thick glass that bounces every negative thought straight back at me, infinitely magnified. My attention is forced inwards but my mind is everywhere but present, infecting all it can with worst case scenarios. I can’t look up and out, can’t see the variety of the world and my place in it, can’t take a long deep breath. My chest physically hurts and I feel constantly sick with the fight or flight chemicals flooding my poisoned body as it tries to deal with the powerful threat of my mind.

The inevitable uncertainty and lack of control

These times are getting further apart and each one adds detail to our understanding of the best way to manage them. But trying to conceive has made my anxiety worse. It’s given it another peg to hang its hat on. Issues with eating and body image are often about control (with an emphasis on control over your body) – and anxiety hates uncertainty. But trying to conceive is a very uncertain time. What my body does – and doesn’t do – isn’t completely under my control.

I was managing my mental health to the extent I felt I was in a position to come off medication – in order to do something that has made the problem worse again. The irony isn’t lost on me – although on bad days it just makes me  want to cry.

And then my periods stopped.

Eeep!
Eeep!

It could be the amount of exercise I was doing to manage the withdrawal and while I learned to function again. It wasn’t a healthy amount.

It could be the additional stress and anxiety caused by withdrawing from the medication and no longer having its support. A final goodbye kick in the teeth.

I went to my usual doctor. He strongly implied that he thought I shouldn’t have come off the medication – or should go back on. He said it often helps with conception as it makes you more relaxed. Which would have been some useful information to know at that first appointment.

Maybe if I’d known more about how trying to conceive can interact with anxiety I would have been more cautious – or at least more prepared. Either way that appointment pulled the only certainty of the last five months out from under me and added yet more questions to my attempts to find the right way to look after myself.

A truly difficult balance

I’ve been trying to balance a truly vicious cycle. I don’t want to go back on SSRIs just yet. It’s only been three months and I was on them for fifteen years. I want to give myself longer to settle and adjust. Coming off was so traumatic I would find it very hard to find a clear path to taking them again right now. But I do feel a regular low level of anxiety that surges up without provocation: spiky, sickening and refusing to be controlled. Except with exercise.

I need exercise to function. And I need to function. I need to be good at my work, to engage with friends and family, to be silly and loving with my husband and playful with my dog. That stuff is all vital to my mental health as well. Exercise has held it all together. With frequent long runs, cycles and regular challenging spin classes I can cope pretty well. Without them I become much less resilient and much more vulnerable to the automatic thoughts that kick off the spiral into anxiety and very low mood.

But something needs to change. My body is telling me that. In some ways (and on good days) I suppose that’s a cool thing. Nature is telling me I need to work things out, focus on recovery and find a better balance before it will think about letting me get pregnant.

I’ve been trying my best. I’m exercising less, eating better and doing more mindfulness practice. I’m wearing the world as softly as I can. I’m trying not to look directly at conception – and certainly not directly at everything Google has to offer on the subject.

Things are changing – and the signs suggest I might be ovulating again. Fingers crossed. And if not I’ll give things more time to settle. If it turns out that, at some point, that involves medication again, so be it.

And maybe, in a way, in the long run and whatever happens, trying to conceive will have also helped me find that balance and pushed me look after myself better than I was before. Let’s hope so.

 

take offthetape

P.S – I was quite anxious about sharing this. It’s not an easy thing to talk about. But when I posted it on Twitter yesterday I got responses like this. Which is why we should keep these kind of conversations going – and why I’m supporting #TakeOffTheTape.

8 thoughts on “We need to talk about mental health and trying to conceive #takeoffthetape”

  1. John says:
    May 6, 2016 at 4:50 am

    Great post. I’ve been on anti-depressants for about 14 years, similar to you. The withdrawal process can be awful. I don’t believe long term medication use to be beneficial for many of us. I feel that diet and meditation could help you in your efforts to conceive while coming off the meds. Good luck to you. Please also check out my blog, at http://www.ibeatmysocialanxiety.com. Thanks, John

    Reply
  2. Larry Lewis says:
    May 10, 2016 at 7:17 am

    Your transparency and openness will help others to find the courage to implement change. It is our life story’s that will inspire others and show them they’re not alone.

    Reply
  3. Alice says:
    August 2, 2016 at 1:07 pm

    I am so similar to you in so many ways but, pleased to report, a bit further down the line. I now have three children and gave found that having them has helped me loose a bit of the pressure I put myself under, I have less time to think. Pregnancy was a hard time for me, watching my body change and trying not to put on too much weight whilst also eating enough to feed me and baby. I had awful post natal depression but I have come through that now (my youngest is 7!). I still have dark times but am better at noticing them and seeking help. Exercise always gas and always will be a huge part in my life but I am now a role model for my children. I wish you well on your journey and hope you have a happy ending. X

    Reply
    1. fostress says:
      August 2, 2016 at 1:31 pm

      Thank you very much for getting in touch Alice. So pleased things are going well for you 🙂 xx

      Reply
  4. Pingback: Why ‘Depression Island’? | Clare Rose Foster
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Wow! This is a wonderful example how good consultation and understanding your audience can lead to great quality information! The consultation, planning, and promotional plans show excellence in producing health information. This shows through in the end products – high quality and extremely well-tailored to the audience. The insight and thought that has gone into this is commendable. 

Dr Hannah R Bridges – HB Health Comms Ltd

Clare created fantastic bespoke moderator training and helped us develop our brand-new survivors’ community. She went out of her way to ensure that the training met our needs exactly by engaging in various in-depth discussions and learning about our sector. But beyond that, she also helped us to build our vision for the community and the community guidelines; created an editable handbook for our future use and changing needs as the community grows; and offered ongoing support with tweaking the training as the forum develops.

Venice Fielding - Cardiff Women's Aid

Clare highlights the wide range of feelings and reactions during and after pregnancy loss, the different impact that each experience can have on each individual and the diverse needs of those affected. Just as important, she acknowledges the difficulty of those who want to offer help, but aren’t sure how to, or when. She makes it easier for them to understand and empathise, and offers practical suggestions with knowledge and also with humility… This is what makes for such a special book, for which many many people will be grateful.

Ruth Bender Atik, National Director, The Miscarriage Association
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