Tag Archives: Stigma

A letter to Incognito about OCD

Hey Incognito,

screenshot-2016-09-18-11-38-21You probably haven’t thought it through – and I’m sure you don’t mean to cause offence – but I wanted to highlight some of the problems with your OCD Hand Sanitizer product and the accompanying text.

OCD is an incredibly debilitating mental health problem. So much so that the World Health Organisation ranks it in the top 10 disabling illnesses (both mental and physical) in terms of lost earnings and diminished quality of life. Yet it remains one of the most misunderstood and trivialised of conditions.

I’m so OCD” or “I’m a bit OCD about that” has become shorthand for “I like things to be clean” or “I like things in the right order”. Comedians joke about it. We’ve all seen a picture on social media of some slightly misaligned objects with the caption ‘This is sending my OCD crazy’. Products like this perpetuate those myths.

Jokes and misunderstandings trivialise OCD

OCD gives people constant negative, repetitive and intrusive thoughts, combined with an ongoing feeling of doubt or danger. These are the obsessions. Compulsions develop to try and quell the thought or quieten the anxiety. They can be things like repeatedly checking a door is locked, repeating a phrase over and over again in your head, checking how your body feels, cleaning or repeatedly asking for reassurance. The relief caused by completing a compulsion is usually short lived and before long the anxiety and mental discomfort caused by the obsessions and doubts rises again.

You can get stuck in an exhausting cycle of rituals and often choose to avoid places or people that may trigger their obsessions. Your day to day life is disrupted and relationships may be strained to breaking point.

Intrusive thoughts can be graphic, violent or scary. You may be very ashamed of these thoughts and spend a long time checking whether they might still be there and how you feel about them  (for example ‘am I still appropriately upset by them?’). You may feel the thoughts mean there is something ‘wrong’ with you as a person – and don’t feel able talk about them or ask for help for a long time.

Every time someone says “I’m a little bit OCD” , shares an OCD joke on social media or sells a product that makes light of it, they add to the impression that OCD is trivial – even a bit comical. This makes it much harder for people to seek help or even open up to their friends and family – and for research and support services to get their share of limited funding.

Imagine if you had to explain to friends and family what cancer really was, how it affected you and that it wasn’t an amusing or comical condition. Imagine how isolating it would be if they still didn’t really understand or made conscious or unconscious judgements about what it ‘really’ was based on jokes and viral pictures on social media. Imagine if shops sold joke ‘cancer hats’ which you could put over your own hair to look as if you were having chemotherapy.

Misinformation stops sufferers seeking help

It already takes an average of over 10 years for people with OCD to seek help. Often that’s because they don’t realise that they have a recognisable condition with potential treatment options. If you’ve always been led to believe that OCD is just a quirky approach to being clean and organised then you might not realise that the intrusive thoughts or crippling doubts you’re constantly fighting are also OCD.

Language is a powerful thing – even small everyday comments, ‘funny’ product descriptions and cheeky ‘likes’. Let’s use it to learn more, to support others and to fight stigma and misunderstanding rather than perpetuate it.

Please consider reading a little more about OCD and removing this product from your shelves.

Thank you,

Clare

We need to talk about mental health and trying to conceive #takeoffthetape

Find out more about Mind's campaign here: http://www.mind.org.uk/get-involved/take-off-the-tape/

Find out more about Mind’s campaign here: http://www.mind.org.uk/get-involved/take-off-the-tape/

Mind has been asking people to #TakeOffTheTape and share something that makes them anxious. Something they haven’t spoken about before.

I thought I would use the opportunity to write about something that’s hardly spoken about at all.

I’m finding it incredibly hard to balance trying to conceive with managing my mental health.

We don’t talk about this. We don’t even talk about the first twelve weeks of pregnancy much (as I’m well aware from my work with the Miscarriage Association). Trying to conceive often happens in almost complete secrecy. I didn’t realise how it would interact with my fluctuating mental health and I wasn’t prepared.

It’s taken a while to get to this stage. The doctor who removed my coil last year strongly implied that it would be best to continue with my efforts to come off my Citalopram. She moved me to Sertraline (it’s considered safer in pregnancy) and told me to try and reduce my dose completely over the next month.

Coming off medication

In fact it took me three more months. I’ve been trying to come off anti depressants for a while anyway (after a muddled fifteen year relationship with them) and trying to conceive gave me the strength to make it through a hideous withdrawal period. It was probably the hardest thing I have ever done. Alex didn’t have much fun either. I’ve written about it here.

I’m more vulnerable to hormonal changes now. I still have very dark times when everything seems hopeless and I can’t see a way through the next ten minutes let alone the rest of my life. Difficult images and ideas jostle with an endless repetition of fears and doubts. Sometimes the same phrase over and over again. They whisper just below the surface of my consciousness. They’re loud enough to wear me down and shrink my focus to a single point of constant worry – but not quite conscious enough for me to recognise what’s happening in a way that helps me stop.

One these days I’m separated from the world by thick glass that bounces every negative thought straight back at me, infinitely magnified. My attention is forced inwards but my mind is everywhere but present, infecting all it can with worst case scenarios. I can’t look up and out, can’t see the variety of the world and my place in it, can’t take a long deep breath. My chest physically hurts and I feel constantly sick with the fight or flight chemicals flooding my poisoned body as it tries to deal with the powerful threat of my mind.

The inevitable uncertainty and lack of control

These times are getting further apart and each one adds detail to our understanding of the best way to manage them. But trying to conceive has made my anxiety worse. It’s given it another peg to hang its hat on. Issues with eating and body image are often about control (with an emphasis on control over your body) – and anxiety hates uncertainty. But trying to conceive is a very uncertain time. What my body does – and doesn’t do – isn’t completely under my control.

I was managing my mental health to the extent I felt I was in a position to come off medication – in order to do something that has made the problem worse again. The irony isn’t lost on me – although on bad days it just makes me  want to cry.
Continue reading

Standing up to stigma – why I blog about work, projects & my mental health in one place

Pressing pause

Linked in

Should my LinkedIn link to my blogs too?

Every time I go to press ‘publish’ on a tricky post exploring my mental health I pause for a moment. The way my blog has developed means that my personal struggles and successes sit alongside blogs about my work and details of my skills, training and experience.

Should I keep them separate? Will employers reject me if they read that I took Citalopram for 15 years or that I use exercise to manage my anxiety?

I know stigma and discrimination around mental health in the workplace exists. I spent 2014 time to changeproviding evidence based reports on mental health policies and support in a number of organisations across a range of sectors for the Time To Change Organisational Healthcheck programme. Tom Oxley writes a good piece about how the programme worked on pages 10 and 11 of this newsletter.

I spoke to people in every workplace who said that they wouldn’t tell their manager if they were experiencing a mental health problem. Many said they would lie about taking time off.

”I’d probably say I had a migraine or something”

Those who had been honest about taking time off for a mental health problem said they felt that now they had more to prove.

Unfortunately in some cases I could understand why. Some managers said they felt people with mental health problems couldn’t ‘cope’. Others saw investment in employees’ mental and physical health as a burden rather than something that makes moral and business sense.

”You’ve got to be careful or people will just take advantage, start using ‘depression’ as an excuse.”

”We need people on top form to do this job – if you’re depressed you just won’t be able to cope.”

1 in 6 employees are currently dealing with a mental health problem. Like colds, flu, delayed trains, bereavement and accidents it’s always going to be part of a workforce. It’s how employers deal with it that counts.

My mental health is part of what makes me. It’s part of what makes a life – and in many cases it’s part of what makes me good at the work I do.

Pressing publish – every time

In the run up to Time To Change’s Time To Talk Day on Thursday I thought I’d share some of the reasons why I press publish on those tricky posts every time.

Continue reading

Organisational Healthcheck Consultancy for Time to Change

Attending the Time to Change Organisational Healthcheck training and away day

I recently attended a training and meet up day for Time To Change Organisational Healthcheck Consultants. As I mentioned when posting about the work I did on an anti stigma campaign for Richmond Borough Mind, there is still a lot of discrimination, misunderstanding and silence surrounding mental health in the workplace.

The Time to Change Healthcheck

The Time To Change Organisational Healthcheck seems to be a brilliant programme. It will often, but not always, start with organisations making a pledge to end mental health stigma in their organisation. As part of their plan to do this, they ask Time To Change to do an independent review of the current situation in their workplace. As a consultant I will look at the current policies and documents, conduct an organisation wide survey and interview employees about their experiences. I will then produce a report and recommendations for the organisation.

Some organisations choose to do this as the first step towards improving mental health in their workplace. Others will put some measures into place and then ask for the healthcheck as a way of assessing their success.

Learnings and good practice

We spent the day sharing good practice and key learnings from the healthchecks already completed. It sounds like in many cases there are simple, creative solutions to issues that come up. Often people are uncertain about how to manage or talk about their own mental health or that of their employees. They may need suggestions and examples of good practice from elsewhere.

Sometimes the issues are more entrenched and will take longer to rectify – but at least the organisations have taken the first step.

In all cases it sounds like employees appreciate having a confidential, non-judgemental space to talk about their own mental health and wellbeing.

I’m only just starting this project, but I’m really looking forward to getting more involved.

Five good things a day for World Mental Health Day and beyond..

Happy World Mental Health Day everyone!

Looking after your mental health

If you don’t have a diagnosed mental health issue then you’d be forgiven for thinking that dancinngWorld Mental Health day isn’t for you.

But we all have mental health in the same way we all have physical health – and that mental health needs to be understood and looked after to help us stay happier. And the better we do that, the more resilient we become. This means that when things do get difficult we’re more able to cope with them.

It’s pretty similar to physical health really – if we don’t look after ourselves we’re more vulnerable to colds, flu etc. And when we do get ill our overall health will help determine the speed of our recovery. Continue reading

Writing my mind – some thoughts about the benefits and impacts of public and private journalling

Childhood diaries

I’ve always used writing to know and to guide my mind in one way or another. Usually, this haswriting taken the form of a diary or journal. In thinking about the part that writing has played in managing my mind, I had an interesting evening going through my old diaries and notebooks. The entries were initially quite amusing and nothing but a day by day record of what went on.

‘’Today Richard got his new high chair it was white with blue stripes and the seat dad got was the same pattern with frills round the edge and mum said she didn’t like it.  Me and Paul might be able to have the box” (3rd Feb 1992)

 

“I dumped Simon today. He practically ignored me all the time. I did it nicely. I haven’t seen him since I did as he is in a different technology group. Had lots of fun second lesson of technology”(28th March 1996)

However, it wasn’t long until they became more difficult to read. This still one causes me pain, and shame at how I treated my parents when I was down.

“Mum says if I treated my friends like I treated my family, I wouldn’t have any. Why do I have such twisted anger and tension in me I have to take it out on people and get in moods” (1999)

Continue reading